WHO DOES YOUR ORGANIZATION SERVE?
CCCC is an interdisciplinary collaborative of thought-leaders from healthcare systems and organizations, government agencies, consumer organizations, and the general public. Through advocacy, education, and resource development, we’re working to ensure organizations and communities have the information, resources, and tools to expand palliative care across the continuum of care.
WHAT IS THEIR BIGGEST CHALLENGE?
Though California has made significant strides in the field of palliative care, significant challenges still remain. The growing demand for palliative care far outpaces the capacity of services. The state needs more specialists and certification programs, as well as reliable funding and better standardization of care.
HOW DO YOU HELP THEM?
California has always been a highly diverse and innovative state. The Coalition for Compassionate Care of California is building on that foundation to change the way we care for people with serious illness. Our activities include:
- Advance Care Planning Initiative: CCCC works with local coalitions throughout the state to engage the public in advance care planning, and with healthcare professionals to make conversations about the end of life a regular part of providing care.
- Consulting Services: Our consulting service works with healthcare organizations to design effective and cost-efficient customized advance care planning solutions that result in a quality experience for patients, families and healthcare teams.
- Pediatrics: We partner with state and community leaders to develop programs that meet the important day-to-day needs of kids and their families. We create opportunities for doctors, nurses, families and community leaders to talk together about the issues that matter most, and work together to create collaborative networks to ensure that when children go home from the hospital they and their families have access to the care they need to be safe and comfortable at home. The programs we create and policies we advocate for not only benefit children, but also the families who love and care for them.
- Public Policy: Changing the model for end-of-life care involves not only families and healthcare providers, but also public policymakers. We track legislation and educate policymakers on issues that increase access to palliative medicine and quality, compassionate care.
- Palliative Care: As the voice of palliative care in California, we incubate and disseminate models and ideas to improve access to quality care for all people.
- POLST: CCCC is the home for POLST (Physician Orders for Life-Sustaining Treatment) in California, and we work closely with more than 25 POLST coalitions in communities throughout the state to spread its use. As a result of this robust, grassroots collaborative approach, we have seen successful implementation of POLST statewide. Learn more at caPOLST.org.
- Education: CCCC leads efforts to train healthcare professionals on POLST and advance care planning, as well as on cultural congruency at the end of life. We help providers develop the skills they need to talk with seriously-ill patients and families facing decisions about goals of care at the end of life.
- Annual Palliative Care Summit: In 2016 we will host our 8th annual palliative care summit. Each year this conference convenes hundreds of leaders including physicians, nurses, social workers, nursing home administrators, chaplains, policymakers and patients interested in clinical research, quality, and policy as it applies to palliative care.
- Resources: We have nearly 20 years of experience creating a range of educational materials for the public and for providers. These resources have undergone expert review to ensure accuracy and accessibility, and many materials are available in multiple languages.
WHERE CAN WE FIND OUT MORE?
Music to Grieve toListening to sad music after losing a loved one, being diagnosed with a terminal illness, or finalizing a divorce might seem counterintuitive, but this somber sounding activity has been proven to help.
Nothing can prepare you for grief, nor is there a right or wrong way to deal with it, but sad music is an easily accessible and highly effective tool that can help you begin to heal.Learn How Sad Music Can Help You