WHO DOES YOUR ORGANIZATION SERVE?

Together for Short Lives is the UK charity that, together with our members, speaks out for children and young people who are expected to have short lives. We are here to help these children and their families have as fulfilling lives as possible and the very best care at the end of life. We can’t change the diagnosis, but we can help children and families make the most of their time together.

Together for Short Lives also supports all the professionals, children’s palliative care services and children’s hospices that deliver lifeline care to children and families across the UK.

WHAT IS THEIR BIGGEST CHALLENGE?

Hearing the news that your child has a life-shortening condition and is likely to die young is devastating. It’s an incredibly distressing and confusing time. These children have very complex and unpredictable conditions and often need round the clock care, seven days a week. Families have to cope with the knowledge that their child will die before them, and daily life for the whole family can become challenging. Although there are many excellent services helping them, these families still have to fight to get the care and support they need.

HOW DO YOU HELP THEM?

  • We are here for every one of these children and their families, being a companion to parents on their journey so they know where to go for support and have the information to help them make the right choices about their child’s care. We are here to help them access specialist children’s palliative care services, day and night, seven days a week—when and where they need it.

  • We support all the professionals, children’s palliative care services and children’s hospices that deliver lifeline care to children and families across the UK. Working with professionals and organizations we provide a strong, unified voice and help services deliver the best quality care and support for children and families.

  • We provide a dedicated Together for Families Helpline and information service so families know they have someone to turn to, available 10am - 4pm Monday to Friday. 

  • We support excellence across children’s palliative care so families have the very best care for their child in life and at the end of life. 

  • We lobby governments and campaign for a secure future for children and families so the services they rely on are there tomorrow and families know they will always get the support they need. 

  • We raise funds for children’s hospice services so they can continue to deliver lifeline care to children and families. 

WHERE CAN WE FIND OUT MORE?

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